A Return to School & Complicated Tears

Mike is a teacher, but because Wednesdays are asynchronous days for his students he was able to go into work a little late and accompany us on our walk to Fletcher’s first day of in-person school.  He is never able to join us for big days like this because of his...

Back-to-School: Big Feelings and a Practice Run

The decision to send Fletcher back to school in-person was one filled with agony, uncertainty and hypotheticals.  Some weeks, it changed by the minute.  We were anything but certain.  Is it worth the risk?  Do we really even know how high the risk is?  Is it worth it...

Genetics: “Is This Where the DNA is Housed?”

We began our journey with genetics about eight months ago.  In addition to sensory challenges, Max has a large birthmark on his back, a significant speech delay, a minor heart murmur and asymmetry in his chest. While none of these things would be particular concerning...

The Pandemic Pivot

One year.  We’ve been at this for an entire year.  To think that 365 days ago I was naïve enough to find myself worrying about surviving two whole weeks at home.  That’s what we initially thought.  Two weeks...maybe a month.  As the days and weeks increased...so did...

Weekend Edition: Fluffy Slime

Let me tell you about Fletcher and his cousin, Ava.  We call them cousin-siblings.  Without sharing parents or residing under the same roof, they are as close to brother and sister as two children could possibly be.  They are alike in the best, but most challenging...

More Lemons Than Lemonade

This morning I let myself feel how hard all of this can sometimes be.  I don’t do that often, and I didn’t stay there long.  But I needed to give myself a minute to acknowledge that I had reached my limit rather than just plowing ahead and pretending that everything...

Cloud Dough to the Rescue

I don’t know about you, but Monday came in like a LION over here (and actually Tuesday and Wednesday did too... is it the weather?!).  In the midst of our rollercoaster of a morning, my sister sent me a TikTok video that included a recipe for cloud dough (bless her...

Weekend Edition of Oobleck

While usually a welcome break from the weekly grind, weekends can also be hard.  We thrive on structure and even though we all need a break come Friday, we also still need activities to keep us engaged so we aren’t completely off the rails come Monday.  When the...

Stacking Sensory Input

Whew.  We are on the struggle bus this week.  It’s Tuesday, but everything has felt hard.  EVERYTHING.  I think it’s a combination of things - we’re burned out from virtual learning, the weather is still cold so we haven’t had as much outside time, there was a full...