by Annie | Jun 24, 2021 | Blog
Hi Everyone! Emily Gutjahr here! I’m so excited to be here as a guest blogger to share some tips and tricks from the lens of a pediatric occupational therapist! I’m happy to share strategies based on my experiences, but if sensory concerns impact your child’s day to day activities, I strongly encourage families to seek a referral from a primary physician for an OT evaluation.
I have been an OT in pediatrics for four years, working with children of all ages and abilities including neurological disorders, Autism Spectrum Disorder, sensory processing, developmental delays, neuromotor disorders, fine motor delays, and handwriting difficulties. I strive to incorporate a multi-sensory approach into my individualized treatment session and utilize a client-centered approach to maximize engagement, participation, and functional outcomes in therapy. In my free time, I enjoy reading, spending time with family, gardening, being outside, skiing, cooking, and traveling.
Speaking of traveling… while it is a favorite pastime for many, traveling can be an anxiety-inducing experience for families who have children with sensory processing and modulation challenges. Because traveling almost always involves a ton of new sensory input, what’s typically intended to be a fun experience can quickly become very overwhelming for everyone involved.
Imagine all the sensory input that can be experienced at an airport for example. People walking around, announcements over the loudspeaker, toilets flushing, coffee brewing, planes taking off, metal detectors beeping, the smell of foods, rolling suitcases, etc. So. Much. Sensory. Input! All those sights, smells and sounds are called ambient information and while most people can block out ambient information in their immediate environments, individuals who experience sensory processing difficulties are not able to appropriately modulate sensory inputs. When more input is received than can be processed, their sensory systems are completely overloaded which can potentially result in meltdowns, difficulty with transitions, shutting down, defiant behaviors (acting out), attempts to flee environment, crying/yelling/screaming, hiding, etc.. That’s hard on the child and on their families.
Helping your child navigate new and overwhelming sensory situations can make all the difference. So let’s talk strategies!
It’s important to note that not all strategies work for every child in every scenario so I recommend having several “tools” in your toolbox. If one doesn’t work, give something else a try and know that what works in one situation, may not work for another. With enough practice, however, managing sensory needs can become second nature and some children are eventually able to employ strategies on their own. Take deep breaths during moments of frustration, come prepared, and work to remain emotionally regulated as the adult so you’re able to help your child do the same.
Following is a list of strategies I frequently share with families as a starting point. You know your child best, but here are some things to consider:
Heavy Work:
Proprioception and heavy work can be a great way to help regulate a child. Proprioception input is any sensation provided to the joints, muscles, or connective tissues and can include pushing, pulling, lifting, and carrying heavy objects. Proprioception can be beneficial as a regulation strategy but also useful for letting a child know where their body is in space (body awareness).
- Jumping Jacks
- Wall Push-ups
- Lunges
- Carrying a backpack with added weight (make sure it’s not too heavy for child, but packs of baby wipes work great for this!)
- Pulling or carrying luggage
- Weighted blanket or lap pad (an appropriate weight for a child)
- Stretching
- Animal walks
- Deep breathing
- Stress ball
- Building with Legos (the clipping together and pulling a part)
- Putty or Play Doh
Auditory:
Oral:
- Crunchy/chewy snack (gum, crunchy granola bars, raisins, fruit strips, gummy candy, sports bars, lollipops)
- Cold snacks (popsicle, frozen yogurt, frozen fruit)
- Chewy necklace
- Drinking from a water bottle with a straw (CamelBak water bottles are great because they require child to bite and suck simultaneously which provides multiple points of input.)
Transitional Strategies:
- Foreshadowing (so that the child knows what will happen next)
- Sharing pictures, videos, or a social story ahead of time (some children benefit from starting this process well in advance of a new experience while others just need a day or two to give their brains enough time to organize around what’s coming next.
- Use of “first, then” statements (first we will pack the car then we will drive to Grandma’s house.)
- Bringing a favorite toy or comfort object from home (pillow, blanket, stuffed animal, etc.)
- Writing out a checklist or using pictures (visual schedule) and having the child check off or put a sticker on the completed steps.
- Drive, park car, wait in line for security, wait at gate for plane, get on plane, etc.
- Providing choices (Noah, what would you like to do first? Play on the playground or eat lunch?)
- Faded transitions (counting down, timer, etc.)
When Flying for Travel:
Most airlines are very accommodating with regard to sensory processing. Call the airline ahead of time and explain your child’s needs. They will often allow families to board the plane last and make other necessary accommodations as needed. Some airports also have a playground area that can be used for added sensory input.
If your child prefers small, quiet spaces, seek out corner chairs that are slightly secluded if you can find them. You could also bring a small blanket to drape over an airport chair to serve as a tent/fort to reduce some of the noise and visual stimulation.
Car Travel:
For car travel I often suggest creating a travel sensory bin that includes some of the following: Koosh ball, fidgets, bubble wrap, stress ball, Play Doh/putty, pop tubes, Legos, pinwheel, light-up toys, etc.
If you are going on a long road trip and plan to purchase new sensory toys, you might want to consider wrapping these items up so your child has something new to open every few hours to help pass the time. Setting a timer could help them know when their next “surprise” can be opened and may eliminate (or at least reduce)vthe “is it time yet?” questions 😊. A similar strategy could be used to help minimize the “are we there yet?” as well.
Other strategies for managing sensory needs can be found on the Swinging in the Rain website listed by sensory area as well as links to some fidgets and other budget friendly tools that are great for travel.
Wishing you a safe and happy summer. Until next time!
by Annie | Jun 13, 2021 | Blog
I spent a long weekend in Denver celebrating a milestone birthday for one of my dearest friends recently. It was the first time I had been gone from my entire family overnight since before the start of the pandemic and the longest I had ever left Max. I knew my husband had it handled (and he totally handled it!), but the mom guilt before I left was REAL. I furiously organized what I could, wrote down important information, set out some clothes, grocery shopped, cleaned, packed and made list after list.
Preparing Fletcher for my trip was probably the most difficult part. We were again faced with the dance of telling him about my trip in enough time for him to organize around what was happening but not early enough that he perseverated on me being gone. It’s such a delicate balance. We’re getting better at this as time goes on and it helps that Fletcher is getting a little older, but it always feels like a bit of a gamble. It just happened to work out with my flight departure that I had enough time to take him to school the morning I left. That turned out to be the best way to do our goodbyes. It was like a normal school drop off and even though he knew he wouldn’t see me that afternoon, he was so preoccupied with his friends that he didn’t get upset and we didn’t need a long drawn out farewell with lots of tears. It was perfect for both of us.
My weekend was filled with copious amounts of nature (oh my, those Colorado mountains!) and nurture (time with dear friends always fills my cup). It was exactly what I needed when I needed it and I have vowed to never wait as long for a mama trip again.
On a granular level, I found great joy in the simplest things. I drank hot coffee, hiked without a backpack loaded with snacks, drinks, diapers and fidgets, stayed hydrated, spent more than 15 minutes getting ready in the morning and did so while listening to music or an audio book. I had time to wind down before bed, got uninterrupted sleep, enjoyed long chats and in the biggest way, I was reminded of the person I am outside of being a mom and a wife. I love both of those titles tremendously, but parts of ‘me’ were lost this year and I needed to find them again.
I’ve visited the mountains many times before. While I’ve been awestruck by their beauty, this time felt different. I fell in love with those majestic mountains this visit and I’m so grateful. They were a timely reminder that this life is so much bigger than any one of us, beauty surrounds us – we just have to open our eyes (and be present), and with time and space comes perspective.
My biggest take away from a major, long overdue reset is that while there’s a time and a place to have a clean house, laundry handled and the lawn mowed (all things that hold some importance to me), my biggest priority is spending time with my family. These “our kids ae little” moments are fleeting. Time doesn’t stand still for anyone and they are growing up right before our eyes. In reflecting, I realized that there are many days I don’t even think about being in the moment because I’m so focused on one of my many lists of things to do, logistics, scheduling and all the things.
This reset gave me time to be in my own thoughts. To genuinely reflect. To find beauty and solace in staring at the mountains and not simultaneously doing anything else . I found being unplugged refreshing. Aimlessly scrolling through social media doesn’t bring me joy. But I still find myself doing it. I was reminded that it’s okay to get lost in a book (right now it’s audiobooks for me) and that I feel my best when I’m hydrated, eating food that’s good for me and moving my body. I had this epiphany that it’s perfectly acceptable to jump on the trampoline with the boys instead of pulling weeds or picking up, that I want to say “yes” more often when they ask me to play rather than “well I can’t right now because I have to…” or “in a minute, let me just finish these dishes…” They deserve that. And you know what? So do I.
I’ve been focused on wanting to lose some weight. You know… the kind that three years ago could’ve been qualified as “baby weight” but then I watched that ship sail into the sunset so now I’m just left with stress eating weight. Doesn’t sound nearly as sweet! What I realized while on my trip is that while I want to lose weight, I actually want to find balance… more. And I’ve come to believe that with that balance will come the shedding of baggage in the form of stress, anxiety and pounds. When things are overly complicated, I’m just not able to stick to them. The last thing I need in my life right now is more obligations, more parameters, more things to follow and then stop because it’s just too much.
The solitude of my time away and a good conversation with my dear pal gave me the opportunity to create a plan. I realized that I can keep it simple by creating space for MORE of the things that are good for me and being mindful about the things that need far LESS of my time and energy. Here’s what I came up with:
More:
Water
Fruits and veggies
Movement
Mindfulness
Joy
Sleep
Being in the moment
Less:
Stress
Processed food
SUGAR
Screens
Social Media
Comparison
Guilt
I am someone who needs a visual. So I made one. Feel free to use it if this resonates with you (link below). I’ll be hanging one in my bathroom, putting one on the fridge and keeping one in my planner (yep…I still live the paper planner life!)
My biggest take away from my much needed “break” was that I need to create the time and space to do that more often and I encourage anyone who needs to hear it to do the same. It doesn’t have to be expensive or require airport security lines. It could be a solo night in a hotel, an overnight with a friend or family member, maybe just a day in nature or a very slow walk through every single aisle at Target with your favorite beverage in hand. Whatever it is and however it looks… just find a way to create that time for yourself. You can’t pour from an empty cup as they say. I’ve tried. It fails every single time.
I’ve been home for a week already and I can’t believe how much lighter and happier I feel. I have more patience, feel more connected with my husband and am able to find more joy in even the simplest moments. I might even go so far as to say I feel present. I know it won’t feel like this all the time, but I also know how to recognize when it’s time for another break. Awareness is key.
Parenting and partnering are hard and so is navigating sensory challenges. When you put all of that together and you add normal everyday stressors, life can feel impossible. I hope you’re able to find a way to take a break (even if you have to be creative) when you need it. You deserve it.
XOXO
Balance Visual
by Annie | Jun 11, 2021 | Blog
We made it. WE made it. WE MADE IT! Emphasis on the WE. This year was really something and it took a literal village for us to get to the finishline. But here we are, taking a deep breath on the evening of Fletcher’s last day of kindergarten. We officially have a first grader. A first grader! I was not at all prepared to have those words come out of my mouth.
I didn’t realize how little time I had taken to process just how hard this year has been until all of a sudden, the last day was here and I found myself tearing up while I gave Fletcher’s teacher a giant hug of gratitude. We wouldn’t have made it without her.
The year got off to a rocky start, as it did for many. Our very literal boy couldn’t get on board with calling virtual learning “school.” “This is NOT school, Mom,” he would say with conviction. And on some level, he was right. It didn’t require that he get up and out of the house with his backpack and his lunch bag in tow. It didn’t offer any opportunities to be in the physical presence of his classmates and it didn’t allow him to enjoy the typical kindergarten classroom with brightly colored rugs, alphabet bulletin boards, the old school kitchen area and the smell of vinyl nap mats. And…I most certainly was NOT his teacher. We did our best to replicate ‘school’ at home, but it just wasn’t the same. So we stopped calling it school all together and referred to it as virtual learning – exclusively. That seemed to help. At least a little.
Despite what felt like an endless stream of insurmountable challenges. Fletcher grew this year. And he grew and grew and grew. Physically of course – he’s several inches taller and now requests hair gel for his short locs (oh my Mama heart!). But also emotionally and academically. He is reading sight words, finding joy in doing math, and making connections. He wouldn’t touch a writing utensil in September without a major meltdown. This morning he wrote a note to his teacher on his own. HE WROTE A NOTE.
When his school went back to in-person learning we were so torn on if we should send Fletcher. We ultimately prioritized his mental health and wellbeing, having incredible trust in his teacher and school leaders to maintain a school environment that was as safe as possible. And it turns out we made the right decision for him. I’ll never forget the first day back. Mike and I walked him to school together. I fell apart on the way home – would he do okay? Would he be safe? Would he keep his mask on? Would he be able to handle all of the sensory stimulation? Would he be able to navigate friendships and other social situations?
His teacher was managing virtual and in-person learning simultaneously (that’s complete insanity in and of itself, but we’ll save that for another day). Being the superhero that she is (and probably sensing my trepidation), she took the time to send me a note that day. “Fletcher was wonderful today,” it said. “He will be a leader and helper in our room. So glad he is in person with me!”
A leader and helper. I don’t know that I would’ve read those same words in September, but they were music to my ears in April. She’ll never know how much that note meant to me, but it was exactly what I needed in that very moment. And she was right. Fletcher had grown into his own (more than I realized). He was so happy to be back in person with his peers and it showed. Every day Mike would ask him how he helped someone that day at school. And everyday he was able to list off something positive he had done for someone else. He was SO proud of himself. That pride carried over to us.
I don’t ever want to do another year like this again, but I am incredibly grateful for what it taught us and to have had more time with my babies (even though many days were really hard). While I’m not sad to bid this very challenging school year farewell, I will carry a few things with me:
- Children are resilient – more than we often give them credit for.
- What doesn’t completely break us strengthens us. We were tested in ways we never could have imagined and are stronger on the last day of the school year than we were on the first.
- There is value in having the gift of time. Even when it’s hard.
- Time for caregivers to recharge (in any situation) isn’t just important, it’s vital.
- It’s important to be able to look back on a period of time and recognize how far you’ve come. Progress over perfection every single time. Progress is so powerful.
- Many of our systems were broken before the pandemic and they remain that way. We have a lot of work to do to ensure everyone has access to the resources they need. All of our babies deserve to feel safe, loved, cared for. No matter their situation.
We’re happy to be swinging into summer as we send love to all who, like us, are ready to relax, recharge and regroup…however that looks.
And a shoutout to our village. You know who you are. We are so grateful for all the ways you supported our family this past year.
XOXO
by Annie | May 20, 2021 | Blog, Uncategorized
Fletcher started baseball last week along with his cousin Ava and his best buddy Quincy. He couldn’t wait. He was excited to get back out there after sports were cancelled last summer, but we had some big nervous feelings on the first day of practice. We talked through what he could probably expect, validated his feelings and did some extra heavy work (thankfully he also had OT right before practice). Once he was on the field, he was totally in his element and settled in just fine.
If we’re being honest, I was anxious before his first practice, too. I wasn’t sure if I should tell his coach about his sensory challenges as I had done in the past, or if I should just wait and see how things played out, giving them the opportunity to get to know each other without any preconceived notions. I opted for the latter. Sensory Processing Disorder plays a leading role in our lives, but it doesn’t define Fletcher. I wanted to give his six-year-old self a little independence and autonomy and a chance to establish new relationships without the overzealous mettling of an anxious, hovering mom who just wants to protect him…from now until forever.
When we arrived, my nerves disappeared the minute I saw the other kids on the field. His teammates were just as active and playful as Fletcher….we were clearly among our people. That feeling always gives me the gift of a sigh of relief, a clear mind and a sense of calm. We were ready to play ball.
Now… let’s be clear. Being the parent of a child with SPD (or any exceptional needs for that matter) typically doesn’t mean dropping your kid off at practice and coming back to pick them up an hour later. In my experience, it’s the constant dance of being present enough to intervene when it’s necessary while knowing when to let situations play out and providing just enough freedom that your child can successfully navigate social situations independently, but not too much that it becomes overwhelming for them. It’s incredibly difficult to prepare for that kind of ambiguity. There are so many variables – many of which are completely out of your control.
The first night of practice went great, as did his second practice from where I was sitting in the stands. Fletcher was attentive, followed directions, was eager to do what his coach asked and was interacting with many of the kids on his team – not just sitting in a comfortable bubble with his cousin and friend.
Towards the end of practice, the kids had to wait in a long line for their turn to try hitting. Attention spans were waning and some were getting a little fidgety. But Fletcher did pretty well there, too. For us, waiting is often really hard and so is anticipation. So I was proud of him for keeping it together.
After practice, Ava came running up to let me know that the mom of another little boy on their team was talking to the coach about Fletcher. Apparently he had playfully put his hands on her son and she was upset. She discreetly talked to Fletcher directly saying “let this be the last time you put your hands on my son” without me knowing and then spoke to the coach about it after practice. Had Ava not mentioned anything, I wouldn’t have even known any of this happened.
I felt compelled to talk to the coach and explain that Fletcher struggles with sensory processing and a part of that includes difficulty understanding boundaries at times. “This is a safe space for everyone,” the coach replied quickly and confidently. While it didn’t mitigate my frustration and hurt feelings, it certainly made me appreciate that Fletcher has a coach who is going to work to support all of the children on his team. That’s a win in and of itself.
Fletcher seemed unphased by this whole scenario despite his cousin being acutely aware of what had taken place. On our ride home, I asked Fletcher general questions to try and get more information on how this played out without imparting my feelings of frustration and anger (with how the mom handled things) onto him. When he finally told me that this mom had talked to him, I asked him why he didn’t tell me. “Because I didn’t want you to feel bad, Mom,” he said.
My friend Amber described it best by referring to my Mama Bear feelings as heart-stabby. I sat in that heart-stabby state for the hours following practice. And I realize it’s because for me, being a parent is so deeply personal. We work so hard at home to make sure Fletcher has the tools and strategies he needs to be successful and he works really hard, too. When I send my child out onto a field or into a classroom, I’m sending a giant piece of myself with zero protection and I have very little control over his environment, his actions or the actions of others. Every single time I’m simultaneously proud, nervous-excited and terrified. Every. Single. Time.
I can rationalize in my head that not all people recognize the varying needs of children, nor do they always have the capacity to be compassionate… and quite frankly sometimes people simply just don’t care if it isn’t their child. What I struggled with the most in this situation is that someone would directly address a child they have no relationship with (and know nothing about) without involving a parent or coach – especially at this level. Fletcher is six.
After a few tears and a little reflection as I worked through the prickly, heart-stabby feelings this situation left me with, here are my takeaways:
Prepare, Prepare, Prepare (children and adults): Team sports can be hard, especially the first few practices while trying to get everyone organized and into a routine. Implementing some strategies can be helpful. I didn’t prep Fletcher for this like I normally would have, as we’re new to the league and didn’t quite know what to expect. Now we know. If I were to do this over again, I’d work with him to develop strategies for what to do during idle time. (Ask someone to play catch, do jumping jacks, run in place, play rock, paper, scissors, ask the coach if there’s something he can help with, etc.) and I’d also spend a little more time working on personal boundaries in that specific environment. Maybe some role playing that includes the notion that knocking someone’s baseball hat might look fun, but most people won’t love it.
Prepping the coach ahead of the first practice may not have eliminated this situation completely, but could’ve maybe given him some things to watch for. So for the foreseeable future, I’ll be making sure adults who work with Fletcher understand his needs. The tricky part is doing so in a way that helps folks see the whole person rather than focusing on areas of struggle. We weren’t quite ready for a “wait and see” scenario. I’m working on a quick at-a-glance that outlines his strengths and areas that are more challenging – kind of like a play card, but specific to his needs. I don’t want to overwhelm anyone with too much information, but also want to provide them with quick access to helpful tips that will promote success on all sides.
Support: We tend to travel in a pack which means signing Fletcher up for activities with a buddy or his cousin, or in this case both. And this situation made me realize that not only does Fletcher benefit from that kind of support, but so do I. I needed Ava there for Fletcher’s sake and I needed my sister and my friend Amber there for me. Find your people when you can and support each other – in school, at home and even on the baseball field. It takes a village. Seriously.
Tune Out the Noise: Team sports usually involve being among other parents and families. Most are wonderful. But there will always be some who for whatever reason just lack compassion, sensitivity, empathy…. I’m learning that while it’s easy to let one negative comment or gesture put a sour spin on an evening – it’s just not worth it. Folks who bring negativity to youth sports simply aren’t my people. That’s not to say that you shouldn’t engage with them If there’s a teachable moment or a positive opportunity to connect. But generally speaking, I think it’s perfectly acceptable to tune out the noise and focus on what you can control and why you’re there. (I’m totally speaking to myself with this one!)
Tools in Your Toolbox: Sports of any kind can be a recipe for sensory overload – loud noises, scratchy uniform fabric, bugs, new smells, uncontrolled temperature, lots of instructions given at once, lots of people moving about. But that’s not to say that it has to be overwhelming one hundred percent of the time and being in the right team environment promotes the development of wonderful skills. Pack plenty of tools in your toolbox (noise cancelling headphones if your child uses them, change of clothing, compression items, a different pair of socks, bug spray, sun screen, water, snacks, fidgets, etc.), make sure your child knows you have them and that they’re able to access tools when needed. Sometimes Fletcher just needs to know that we have a certain thing with us – even if he doesn’t actually need to use it.
by Annie | May 10, 2021 | Blog
I have recently had the great fortune of receiving some well-timed wisdom. Wisdom that I didn’t realize I needed, but the kind that grounded me, held me tight, and reminded me of just how grateful I am to be on this journey even when it’s hard. Mother’s Day feels like an appropriate time to share.
We are in a challenging season as a family. Like many, we’re navigating endless highs and lows and most days feel overwhelming at best. When we allow it to, that feeling quickly steers us off course. On those days in particular, it’s hard to know what to do next, it’s tough to be the facilitators of the strategies our boys so desperately need and even the most menial tasks feel like giant hurdles. Lately, it was on some of my most difficult days that I received love in the form of perceptive insight.
Several weeks ago, I was talking with a former colleague, filling her in on the boys and the general craziness of life, reminiscing about a project we worked on together several years ago. At some point in the conversation with grace and reassurance she paused and said “being a parent is the most important job you’ll ever have.”
She didn’t know that I was struggling to fit everything in and putting great pressure on myself in the process. She definitely didn’t know that I felt like I wasn’t good enough, qualified enough, informed enough or efficient enough. It was a simple sentiment, but one that has stuck with me. And truthfully, it has become a mantra that I say to myself with care when I’m in need of a reminder. Because, she was absolutely right. No matter how hard this journey is, being a parent is without a single doubt the most important job I will ever, ever have. Perspective.
More recently I had some rare one-on-one time with my dad. I was sharing with him the emotional rollercoaster of a recent breakthrough in Max’s speech development and the challenges we’re working to overcome with Fletcher as we navigate the residual effects of pandemic life paired with his sensory needs. The conversation felt heavy. Because I’m completely exhausted.
He compassionately shared that in parenting, he and my mom used two guiding principles – one is the idea of roots and wings and the other is the notion of unfolding, not molding. The latter is particularly significant because neither of our children fits neatly in a box. And they never will, nor do we want that for them.
That conversation with my dad was a gentle reminder that we’re on the right track. That we’re supporting our sweet, curious, and energetic boys as they grow and unfold into the people they’re supposed to be rather than trying with all of our might (likely unsuccessfully) to mold them into who we believe that they should be based on benchmarks, how others have done it, or social standards. There’s no script, there’s no manual, there definitely isn’t the certainty that we are getting this right 100% of the time. But there’s such a significant difference in unfolding versus molding. And I find so much beauty in the idea of our children growing, evolving, and opening in an outward way as they’re ready.
In quiet moments I’m able to feel extraordinary gratitude for the ways that we are supported on this journey. Sometimes that support is simply a gentle nudge of reassurance through kind, thoughtful words. On this Mother’s Day, I’m sharing the recent well-timed wisdom that I received with the hope that you may find love and support in surprising ways on the days you need it the most.